Diffusion Science radio: NIH ME study criticism

NIH ME study criticism


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Listen to a critical analysis of very flawed research into ME/CFS by the National Institutes of Health. The study has been criticized by experts for ethical and methodological issues, including biased patient selection, ignoring severe cases, and over-emphasizing psychological explanations for ME symptoms.
Produced and hosted by Ian Woolf

Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome
NIH study offers new clues into the causes of post-infectious ME/CFS
Insight into mechanisms of ME/CFS
ME/CFS Experts Express 'Dismay' at Aspects of NIH Study
Research Update: The NIH Intramural ME/CFS Study
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
Nevada senator calls for criminal investigation of CDC over misspent money
Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale
Controversy Claims CDC Lab Chief
Patient perceptions of infectious illnesses preceding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Medical Matters > Aetiology: Causation of ME
Solve Responds to Findings From the NIH Intramural ME/CFS Clinical Study Published in “Nature”
Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses
History of ME/CFS
Ethical Issues
Re-visiting professional ethics in psychotherapy: reflections on the use of talking therapies as a supportive adjunct for myalgic encephalomyelitis/chronic fatigue syndrome and ‘medically unexplained symptoms’
Research shows that ME/CFS is a biological illness – so why do some people still think it is psychological in nature?
Research bias in ME/CFS
The ‘all in the mind’ myth of myalgic encephalomyelitis/chronic fatigue syndrome
NIH Neglect is a Key Reason for the ME/CFS Crisis

NIH Smacks the ME/CFS Research Centers: Plus a Warning for Long COVID – and an Opportunity for Both
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
NIH Post-Infectious ME/CFS Study
Five reasons why the NIH should retract the “effort preference” claims in their intramural ME/CFS paper
Errors, omissions, potential bias: Why some ME experts are calling for a retraction of the NIH intramural study
‘Pacing’ for management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): a systematic review and meta-analysis
Recommendations for the Conduct, Reporting, Editing, and Publication of Scholarly work in Medical Journals

#MEAction’s NIH Study Response
Post-exertional malaise
The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 1)
“Alteration of effort preference” driving PEM from an underpowered study
David Tuller On Exposing the Bad Science Behind the Biopsychosocial Effort to Define ME/CFS
Calls for Retraction of Absurd “Effort Preference” Claims from NIH Study
America: ‘ME/CFS is unambiguously biological, with multiple organ systems affected…’ Dr Avindra Nath
NIH Sidesteps Critical Problems with the ME/CFS Study
CBT and graded exercise therapy studies have proven that ME/CFS and long COVID are physical diseases, yet no one is aware of that
Dr Todd Davenport's thread on the paper on twitter
Dr Mark Vink on "effort preference" in the NIH paper






March 5, 2025
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